My RSD Story

My name is Emily.  I’m a high school student in Austin, TX and I’m a competitive swimmer on my high school swim team and I am involved with other clubs and organizations.

On August 17, 2005 I was diagnosed with Reflex Sympathetic Dystrophy in my right knee and lower leg.  Reflex Sympathetic Dystrophy (RSD) also known as Complex Regional Pain Syndrome (CRPS) is a serious malfunction of the nervous system.  The main effect of the disorder is that the nerve endings in the area that is affected are constantly experiencing extremely severe pain even though there is nothing physically causing the pain.

Some symptoms that occurred throughout my RSD experience included: temperature change in the knee, swelling, abnormal skin color changes, limited range of movement (or no movement at all), sweating, severe sensitivity to touch, and mostly a severe and burning pain.  I experienced all of these symptoms all at the same time.  Today, there is no known cause or reason RSD occurs.  And there is no known cure, no magic medicine that one can take to relieve the pain.

I’m one of the lucky ones because my RSD was diagnosed right away.  I was undergoing Physical Therapy with Kevin McHorse of the Central Texas Pediatric Orthopedics group to recover from a knee injury from swimming.  When we described the condition to Kevin he immediately got us in to see Dr. Jay Shapiro who diagnosed the RSD.

Thanks to Dr. Shapiro and Kevin I was able to begin treatments immediately.  Unfortunately not all doctors are knowledgeable about RSD/CRPS.  Lucky for me, I was diagnosed in the early stage where there was still hope for a complete recovery.    I really was lucky, but I had no idea about what I would have to go through to become normal again.

Dr. Shapiro and Kevin explained to me that my nerve endings had to be reset to respond to normal stimuli.  In a way it was like rebooting a computer when it freezes up.  I was enthusiastic about this.  I was sure I could do this physical therapy.

To reset my nerves I had to desensitize them.  My mother, who is a registered nurse, would have to rub four textures (cotton ball, cloth, hand, and wet cloth) around my knee for 1 minute each four times a day.  Surely this would be easy.  It was not.  The cotton ball felt like fire.  Like a blow torch to my skin.  Soft cotton.  I would scream, cry, and scream and cry through out the whole process.  It was torture.  The disorder had progressed to where any stimuli to my knee – a soft breeze from a fan, a blanket or simply a change in temperature would cause excruciating pain.  I was miserable.  I was in pain 24 hours a day.  On a pain scale of 1-10, 10 being the worst, I was at a 15.

At first I was driven to defeat this disease.  I would persevere.  I was ready for the pain.  Even though there was pain, I would somehow get through it.  I would fight it.  I would think, ‘One less day of pain if I get through this therapy right now, one less day of misery’.  I would persevere because I knew somewhere there was a brighter side to all the pain and misery.  This began to work.  I began to think that I was winning.  But soon the disease spread to my lower leg and foot.  My mom would continue the desensitization treatments.  She would not give up, but I felt I was giving up.

I remember what it was like to feel at times hopeless.

I didn’t know if I could take it.  I began to slack off and lose faith.  The reactions to my slacking meant more physical therapy and more unbearable days.  Victories turned into defeat which led to frustration.  I was becoming frustrated that I wasn’t getting better.  Actually, I was getting worse.  I would pray.  But at one point I was ready to give up.

As time went by I thought about giving up.  I literally wanted to give up and let the RSD take its course.  It was too much work and effort to overcome this.  I couldn’t deal with the pain.  I couldn’t fight it and win.  My mom and dad tried to snap me out of this sorry state I was in.  We had a huge shouting match.  “Emily do you want to walk again?  Without crutches!  Do you want to be in pain the rest of your life?!  Do you?!”

Ever since I was little I told myself to never give up.  To always try my best.  I couldn’t give up.  I didn’t want to be like this for the rest of my life.  I didn’t want to be in this pain and misery for the rest of my life.  I was going to persevere through prayer, faith and determination.  I gave myself no other choice.

Perseverance isn’t something that just happens.  It’s something that you decide to do because you leave yourself no other choice. But you have to back it up with prayer, faith and determination.

This is what I did.

I decided that I had no choice but to walk normally again and to become pain free.  The next day, I had my physical therapy appointment.  I went into my physical therapist’s office and told him to push me hard.  I had made my decision to get rid of this disease.  And that is where my real perseverance began.  I’m not saying it was easy after I had made my decision.  It actually got harder before I got any better.  In addition to the desensitization, I was doing 4-5 hours of physical therapy each day, constantly moving and stretching my leg.   If my physical therapist told me to do something for one minute, I would increase the time for an additional 15 to 30 seconds.  It was never easy and the pain was always there.

Thanks to God, my mom and dad, my sister, Dr. Shapiro, Kevin McHorse, the Physical and Occupational Therapists at Brackenridge Children’s Hospital and everyone who encouraged me I was able to overcome the RSD.

In several years or so I might not remember every detail of my experience with RSD as I do now, but I will always remember the lesson I learned about perseverance and prayer.

Everyone who has RSD/CRPS/RND has a different story.  But in kids, teenagers and young adults, the key is to be diagnosed early and to begin some sort of treatment as soon as possible.  There are still cases of RSD being misdiagnosed and labled as a “psychological problem” by some doctors.  It’s important to find a doctor with experience.

RSD Heroes is here in the hope that anyone reading my story or the stories of other teenagers or young adults with RSD  will be encouraged to keep on fighting, to persevere.

{ 22 comments… read them below or add one }

Felicia January 31, 2009 at 4:58 pm

Hi there Emily!

I found your site through Caf, glad to see you set this up, its a good way of putting it, hero lol.

I never looked at myself like a hero, only a survivor, thing is I dont think I am a hero but reading through the people on here, they sure are and you too!
It is attitude that gets us through in the end so I’m glad you are reminding the world of that!

Take care.

Emily Merriman December 10, 2009 at 6:52 pm

Hey, Emily! I’m a 20 year old student in Austin (Also named Emily!!) who was diagnosed with RSD in my left leg from the knee down. I have been looking for a P.T. in Austin who specialized with RSD/CRPS and it was a lot harder than I expected! I finally Googled “Physical therapy RSD Austin, TX” and your page came up with a lot of great information! What is really interesting is that I know Kevin McHorse and am an old patient of Dr. Shapiro. My RSD was caused by my most recent back surgery in May, but three years earlier, I went to Kevin to recover from my first back surgery! I am so thrilled that he helped you with your RSD and I am going to call his office first thing in the morning!

Thank you so so so much!

rebecca October 6, 2010 at 9:24 pm

hi Emily i have rsd as well and Dr. Shapiro diagnosised me too i was wondering what high school you go to and just wanna say keep up the good work in physical thearpy:)

Magenta November 17, 2010 at 8:52 am

heyy Emily, Im a 17 year old chick from victoria australia i was diagnosed with rsd, crps, whatever you wanna call it …i kinda just call it serious ouchness… where im from there isnt a whole lot know about it so your story really helped me i still havnt found a doctor who knows what the heck it is… at first the thought i had lost my mind turns out its not just in my head … i just wanna say your a really strong chick

Erin March 13, 2011 at 7:05 pm

Hi Emily,
I ran across your story as I researching information on RSD. I’m also in Austin. A few weeks back I went into see my doc about what I thought was a stress fracture in my right foot. Although we (I’m a RN) didn’t see anything on x-ray I was put into a surgical boot for 3 weeks, just in case (over half of all stress fractures are not seen on x-rays). I just saw my doc again this past Friday and the pain was worse and I was having a harder time walking. Over the past 3 weeks right foot had become progressively colder than the left, would at times be pale or even purple, tingle, or swell and be quite hot. Nothing made sense. When it was swollen and as I’d ice it I’d frequently comment that I don’t feel the cold of the ice. Looking back, from the beginning of my foot pain there was discoloration. I walked on my foot for a week in pain before seeing a doctor but remember looking at it and it being purple.
Friday my doc began to worry that I was showing many signs of RSD. He shot my foot with cortisone and an anesthetic which took away all of the pain and the temperature and color of my foot returned immediately! I’ve been experimenting this weekend with walking without my full boot on (which he prescribed for me Friday) and although my foot hurts to walk on it stays warmer as long as I use the muscles in my leg. Yesterday I noticed that my entire right leg has atrophied (shrunk) quite a bit and it is weaker than the left. Today I have feelings of tingling/numbness and coldness to my right arm and fingers.
I go back next week to see my doc and I’m keeping a log of my symptoms for him, but it’s not looking too good for me. I’m like you, if I do get a formal diagnosis of RSD, I’m going to fight like hell to overcome it. May be a bit harder for me than you, I’m 40 but no quitter, especially if it comes to physical activity!!!!
Your story is an inspiration to me and gives me hope that if this is in fact what’s going on that I have a fighting chance to maintain mobility. So far the pain isn’t too bad, but the temperature and color changes are pretty bad.
So, with all that said, I’ll probably begin my battery of tests to see what’s really going on. Fortunately I know a number of Austin’s Pain Management Docs so I’m sure I’ll find someone to help me out.
I wish you continued success with overcoming your RSD!!!

Kelly Sipes May 3, 2011 at 9:27 pm

Hello, My 12 year old daughter, who is a competitive cheerleader and gymnast began having symptoms of CRPS/RSD in both of her legs in February 2011, and was finally diagnosed in March 2011. Her pain was so severe she was not able to attend school, sleep, or wear any type of clothing on her legs she had mottling and toe nail disfiguration. No medication helped her, and believe me, she tried so many different types of medications. She was on narcotics, antidepressants, Lyrica and different “nerve” building vitamins. Her neurologist is wonderful and took a chance on an investigational/experimental treatment that causes that nerve pain cycle to be reprogrammed. After 8 days in PICU she was weaned off of her narcotics and is pain free. Although she has a long road of rehab ahead of her, she is able to participate in her rehab without pain. We were lucky and had a MD that listened and was willing to go the extra mile.

Silvia E May 5, 2011 at 6:58 am

Hi Kelly, What is the name of the treatment your 12 yr old daughter had and where did she have it done? Is this the treatment only being done currently in Mexico and Germany? Please give us more information so that someone might be helped. My son was recently diagnosed. Fortunately he is in remission, but still suffers from other problems and I am not sure if it is because of the RSD. Doing some research on everything out there. Thanks and I wish your daughter continues to heal and get back to normal. God Bless

Jessica Bryant March 3, 2012 at 4:20 pm

Hey Emily,,,
I am Jessica Bryant.! I am 15 Years old.! I was Diagnoised with RSD when I was 13.! I was playing soccer, broke my right leg in 7 places.. And couldnt take my cleat or pads off.! I remeber how bad the pain was… couldnt touch, couldnt breath on it… I swore it hurted when people looked at it.! I was then released from Soccer.. My favorite thing in the world.! So I pushed myself.. And my RSD started spreading.. I now have RSD Through half on my body now.!! I cant sleep, Cant get comfortable or nothing… I havent been able to go to Physical Therapy either…. They said,,, ” They wouldnt know how to treat it”.? I felt as if my life and goals where over..! And that I let down soo many.. Exspecially my Mom… I felt like I failed her the worse.! I would wake up screaming and crying from my cat just laying next to me, or if one of my pillows where too hard.! I went through ALOT… But your story helps me,,, dream and be able to feel normal.! 🙂 thanks.! E-mail me sometime.! Id love to tell you more jessicabryant88@yahoo.com

haley todd March 16, 2012 at 5:15 pm

hi emily,

my mom jen she has rsd! she broke her ancle at first! her doctor mad it worest then after that her doctor said it was rsd! I CRY EVER NIGHT BECAUSE MY MOM DOES! IT BURNS MOST THE TIME SHE SAY. IM ONLY 12 YEARS OLD AND ME AND my mom did everything to gether! i need a cure to this i need something! i have no idea how ro help her! i dont even now anything about it!

emily if u can get a hold of me and tell me more i would love to know! its hard! im in 6th grade my 1st day of middle school i got a call saying mom got hit in a car reack it wasnt pritty
thanks love haley

Stephanie Santos October 5, 2012 at 4:45 pm

Hi Emily,
I just left my ortho’s office today, completely heartbroken as I’m sure you were as well. I’m 23 and have always been very active. In the past 9 months I was also diagnosed with two other diseases, both in my stomach and intestines, so this news was a terrible blow. I slipped and fell two months ago (2 weeks prior to my wedding) and since then my knee kept swelling more and more until it spread down my leg and into my foot causing it to be a balloon. I was researching RSD because the way my doctor described it I felt as if it were all psychological but of course the more I read, the more I realize it is not. Out of everything I have read thus far, your story has turned my view around. You’re inspirational and sound a lot like me. I want to thank you for posting this, it really helped and I will read this everyday if I have to in order to push through physical therapy. You just became a hero in my heart. Thank you so much!

Cathy McClowry February 17, 2013 at 6:04 pm

Can you somehow get me in touch with Keely Sipes who mentioned “investigational/experimental treatment that causes that nerve pain cycle to be reprogrammed. ” I have been diagnosed with CRPS and the diagnosis was just confirmed by another doctor last week. I broke my 5th metatarsal 1st week in January of this year. Everything was healing well until Feb 11th when the temperature changes and strange swelling started(not like the injury swelling). I have started physical therapy want to kick this into remission quickly I would appreciate any information regarding the experimental treatment.
Thanks

Karen February 26, 2013 at 7:04 pm

My name is Karen. I was dx. With RSD In my left knee r/t a fall on a wet floor at the hospital. I am an RN First Assist. I had to have a knee replacement which left me with severe, continual pain Now they say I have RSD and here is nothing I can do . I just saw a specialist in Indy. Left me with vicoden and your the best your gonna get.. This is the forth specialist 2 were pain specialists. I have been a pincushion Nothing has worked. What can I do.

Ellen March 1, 2013 at 2:57 pm

Hi Karen and anyone else out there who suffering from RSD.

My name is Ellen, I am 40 yeas old. I was diagnosed with RSD in June of 2012 after twisting my ankle and tearing a bunch of ligaments. I was in a boot for 6 weeks. I was going to physical therapy and she noticed that I was abnormally sensitive to touch. When she would massage me, the pain was excruciating. Even the very slightest touch would hurt, even the water in the shower would feel like needles poking me, and the sheets in my bed would feel like fire. The color of my foot was blue and the swelling did not go away even after six weeks. The sport medicine doctor diagnosed me with RSD. He immediately sent me to get a nerve block. The nerve block helped a little, the color and warmth came back and the swelling went down a little, but after a few weeks the pain had increased. The doctor sent me for a second nerve block, that one did not help. After the doctor realized it had not gotten any better, he told me there was nothing else he could do for me. He advised me to go to a pain specialist. After talking to a pain specialist, I was told that there is no cure for RSD, but she wanted to put me on a series of intense pain medications, I told her I would get back to her. I couldn’t stand the thought of being on heavy pain medication for the rest of my life! There had to be another way! Out of the blue one day a friend of mine told me to watch “Fat, Sick and almost Dead” (on Netflix) -a documentary about a man who cured himself from a very debilitating autoimmune disease, drinking only vegetable juices. In some of my research about RSD I had learned that some doctors consider RSD to be an autoimmune disorder, so when I saw this movie and saw what this man had been able to do with only vegetable juices, I made up my mind. I had nothing to loose! That same day I went to the market and I bought a ton of organic vegetables and I started juicing. I eliminated all meat, sugar and grains from my diet, for three weeks I only drank juice. After the three weeks I started to add other solid foods to my diet, but only fruits and vegetables as well as beans and lentils and nuts for protein. I also take lots of minerals every day. The pain started going down within a week, and for each week thereafter it kept getting better. It has now been about four months since I started eating this way and I now have weeks at a time when I am virtually pain free. A couple of weeks ago I was able to go on a four mile hike, something I thought I would never be able to ever do again.
The only time I have a little setback is when I have my period, for some reason the pain comes back that week. This happens every month, so it has to be related. I looked it up to see if there are other people out there who get worse at that time of the month, it turns out I’m not the only one.
Anyways, sorry for leaving such a long comment, but Sometimes when I read about people who just got the diagnosis of RSD my heart goes out to them. I know how terrified I was when I got the diagnosis. You feel like your life is over, and you feel like there really is no hope. All the doctors have to offer are drugs and even then there is no cure. Your body is capable of wonderful things. You just have to give it what it needs to heal. If anyone wants to ask me questions you can mail me at ellenmac73@hotmail.com.

Keep your head up! You can do this!
-Ellen

Lisa March 20, 2013 at 8:47 pm

Hi my name is Lisa and I am 24 years old and suffer with RSD. I broke my foot during a dance competition in March of 2006. I was put on crutches and then in a walking boot. When I got out of the walking boot I was having pain when I danced or walked for periods of time. My orthopedic decided to do surgery on my foot in 2007. It was a little better at first and then got worse so I went to another orthopedic. This orthopedic convinced me that he could help my by performing surgery on my foot. So in 2008 I had another operation on my foot. The pain went crazy! I went from only having pain when I danced or took a long walk to not be able to stand. The pain turned to burning and extremely hot like I literally put it in a fireplace. My foot changes color and is extremely sensitive. Sleeping is out of the question because the sheets feel like 300 degrees and the pain is too bad to even shut my eyes. Showers feel like knives hitting my foot and I have not tolerance for heat on my foot so I take cool showers. I am not able to stand or walk longer than 5 minutes and that I do in extreme pain. My socks and shoes feel like they are made out of needles. I am constantly in and out of PT when I have the money. I have had 9 sympathetic nerve blocks and one radio-frequency. All of the blocks helped for a week and then the pain would return. I have had a spinal cord stimulator for 6 months now but it only helps about 15 percent of my pain. I take lots of medications that I don’t want to be on but I don’t know what my other options are. They only give me slight relief some of the time. My current PM doctor believes I more than likely developed RSD when I broke my foot and the surgeries only fueled the fire. Like other people have posted, the only possible way to beat this is to catch it early and receive appropriate treatment. Those are the lucky ones, I was not! And the best advice I can give is to NEVER have surgery on a possible RSD infected limb! RSD is excruciating and severely debilitating!! I have lost friends and family members don’t understand. A normal life is out of reach. PLEASE FIND A CURE!

Best of wishes to everyone!
-Lisa

Michelle Musiello April 26, 2013 at 8:49 pm

Hi Emily,
My 10 year old daughter has been diagnosed with RSD. You have given my hope to keep positive, there is such negativity out there and I refuse to believe this will be a life long problem for her.
what wonderful parents you have!
I hope you are continuing to do well.

Danielle' May 15, 2013 at 3:48 pm

Hi everyone…want to encourage everyone to keep up the faith….I was in a car accident that suddenly took away my life….ive been kicked out of dr offices..literally told I am crazy…and wrote off to be part of an aweful system….I lived on a hardwood floor having to need my spine in straight alignment for months…I feel I was left to die…..my hair died…my gums were dying…I clenched me jaw so hard I broke a crown…been to the utmost of 30 doctors…finding one almost two hours a away who has me very disciplined and not wanting to give up….I feel like it everyday….I am 43….but felt 18 st 41…I am 43 and feel like death…I have gone days without sleep which takes a physical and mental toll on you…no one believed me…one being I was in a car accident at work…but I had the best job on earth…working for Human Services…I am a vet….I had dedicated my life to helping others….I feel like I was brushed under a rug with not being believed….I was overmedicated and my ptsd increased…again…not believed…my accident was 2011….august…I am set with a medical team willing to help…but have to do my part…I started thai chi today….OMG!!!! Pain…but it is discipline and I will make it another 30 seconds past the ten minutes I made it today….by 7 this am… am bedridden….I am starting accupunture once more….giving myself massages and pressure exercises….podcasts to meditate…it is hard…but one day…I will overcome this….I will….I will…I will…believe…stay strong….believe..I have renaulds phenomenon…rib dysfunction…a cervial fusion….migraine associated vertigo…I have core tremors….balance, coordination, memory problems….I am not as smart as I once was….I am dyslexic….my bladder spasmed so much it leaked urine….the biofeedback machine just says I am overwired…. I can go on….I will beat this…I have to…I love challenges..just not this one…I dont want to be part of a system….push for help early….listen to yourself…push push…find out early….beat this a be part of this forum in anyway to help others or yourself….the young lady who started this forum….be proud….email me anytime anyone please….have a great day to the rest of your life….danielle.lee.001@gmail.com

Pete June 19, 2013 at 12:37 pm

Hi Emily,

I wish you continued success overcoming your RSD. Thanks for telling us about your story. It’s also great to hear some stories of hope from Kelly and Ellen. I wish you and all RSD sufferers the very best.
I have developed RSD following a stress fracture and my story is almost identical to Erin’s (in her comment above). I also have not yet received a formal diagnosis. I got rid of my cam boot after 4 weeks of the six initially prescribed because the pain was getting worse, as were the other symptoms.
I have started trying to exercise the foot as much as possible through cycling, but just today have developed the cold pain in my other foot. I will use your experience help me persevere and to keep hope. Many thanks.

Erin,
Could you please contact me on: pete_4000@hotmail.com
My symptoms are identical to yours. Even the arm/shoulder tingling and numbness, once pain, usually at night. Temp and colour changes are still bad, but the pain is manageable without drugs atm. My x-rays now show some evidence of the initial fracture healing. (Cortical thickening) But the MRI showed significant bone marrow edema and tissue edema throughout my right forefoot. The consultant didn’t know much about RSD, but said that because there was no allodynia, and I was out of the boot it would get better…

I’d be really interested to hear how you’re getting on,
Kind regards,
Pete

Kathy Conner June 21, 2013 at 11:43 pm

Hello:
I am 62 and had a thumb reconstruction surgery on 3/20/13. The first day out of surgery I felt like my thumb was having extreme pressure (and pain) applied to it inside my spika cast. I returned to the hospital and asked for the cast to be cut off and changed. They did it a total of 5 times in my first post-op week. On the 5th time, the cast tech said, “you have a lot of swelling and it is just going to hurt” (meant don’t come back again). I didn’t go back until my 6 week check when I went into a splint, another 6 weeks. On the second check another physician saw me and diagnosed me with CRPS. He ordered PT and OT, but “they don’t just deal with pain”, so I am not getting therapy. I am seeing a chiropractor and massage therapist on my own, pain management is scheduled for July 30th. I don’t have a specialist or anyone to help reverse this during these ‘early times’ when it can be reversed.
Thank you all for sharing your experiences. This is a heavy diagnosis and I am amazed at what you all have accomplished. Anyone who can get up and plaster a smile on thier face for even a moment during the day is my hero.
Kathy

Kelley January 4, 2014 at 10:09 pm

Hello!

I am also in Austin Texas. I had RSD/CRPS a few years ago after a wrist break. It was horrendous but PT and Nerve Blocks finally put the beast in remission. I had a very early diagnosis thankfully.

Then oddly enough, my 10 year old son twisted his ankle and got RSD. Again early diagnosis and PT put it into remission. BUT, he got it again – this time in his abdomin and thus it went misdiagnosed for months. It started spreading and intense PT would no longer help at all. It actually made it worse. I prayed and researched since nerve blocks are contracticted in children. And I finally found Dr. Donald Rhodes in Corpus Christi, TX. He is the inventor of the VECTTOR and has been quietly putting hundreds in remission for the last few years. Earl Campbell is one of his patients. I have personal amazing experience with him, as well as hundreds of others, with his noninvasive, painless, FDA approved device that normalizes the abnormal autonomic nervous system. In September 2013 we went to his office for a week, the RSD went into full remission only a couple of weeks later and he has now been in remission for months now. This is after almost 2 years of horrible pain, suffering, missing months of school.

I am posting about this therapy to help others. After all I have been through, I want to advocate to help anyone and any child going through this. I have no financial or vested interest whatsoever, other than helping those with RSD/CRPS.

Dr. Rhodes even has a book called Pain Banishment. But please contact his office to recieve his monograph which explains what is happening and why this works. He is compassionate, brilliant and very accessible with incredible patient care. Talk about a hero. The treatment works and his success rates are in the 90%. http://www.vecttor.co.uk/about-dr-rhodes/

Thank you for helping others!

Sincerely,

Kelley

Rick R February 22, 2014 at 5:34 pm

Hi,
My name is Rick and I am 34 years old and I have had CRPS for two years now in my left foot and leg. I have no insurance at all because I lost my job because I was not able to go back to work because of my condition so with that I lost my insurance and I have applied for private insurance but I keep getting denide and even though I am on disability I was told that I can’t get Medicare until I have been disabled for two years. I have constant pain, numbness, discoloration, stabing pain, burning pain, swelling, nail growth, tremors, toenails following off and much more. I am home bound because I have to lay down a lot because of the swelling, pain and I am always exhausted. I have to use a wheelchair because I am not able to walk on my left foot and I can’t use my left leg at all due to the swelling, pain in my foot, toes, legs, and back. I am depressed because of this condition and really wished I had some relief to the point I want to get out of bed to go do anything. I am to the point that I don’t think it will never get any better and I am scared that it is just going to get worst. Is their anything at all that someone that has had crps for a long time can do to put this in remission or just slow it down so it won’t spread? Please any input would be very appreciated.

Leigh Ann September 1, 2014 at 8:47 pm

Hello, I was diagnosed with RSD a few months ago when I sprain my thumb and my entire hand and wrist swelled. I have every symptom of RSD except I do not have the pain. I have swelling, shiny skin, red/purple colored skin, limited mobility, but no pain. I have been getting acupuncture treatments for several years for overall good health. I believe my acupuncture treatments are the only reason I don’t have pain. Almost all the inflammation is gone and I’m starting to get my mobility back with PT. Thank you for this article to give people hope that RSD can get better.

sammi May 1, 2015 at 12:23 am

My husband is 44, he was diagnosed with rsd three years ago, after surgery for a broken arm. Luckily he was diagnosed very early in fact within 3 days of his surgery. Only because he was in so much pain I didn’t know the man in front of me, been together since we were 15, so I knew something was very wrong. ..still with early diagnosis he/we went through hell. It’s not only physical, it’s mental As well, depression set in and it was a vicious cycle. He is in remission thank god…but you always wonder….when will it rear it’s ugly head, because it does. I don’t care how early u discover u have rsd it is not curable. We had him in pt and getting help right away, it still comes and goes ..there’s no full recovery from every body / doctor we’ve spoken with, can only pray for remission. . Prayer s to all.

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