RSD Hope – Teens

by Emily

RSD Hope Teens is part of the amazing RSD Hope organization run by Keith Orsini.  Along with Betsy Herman, Keith wanted to set up a place online where teens who have RSD / CRPS could talk to each other and encourage each other in their fight with RSD.

Keith and Betsy also moderate the RSD Hope Teen Yahoo Group.  It is a very active group of teenagers with RSD.  Everyone in the group is incredibly helpful and understanding.

Keith and Betsy have been through a lot wit their RSD, but with their determination and perseverance they have gone on to help so many people of all ages who have RSD.

If you are a teenager who has RSD or whose RSD is in remission or if you have a brother or sister or friend who has RSD and want to help them out by understanding what they are going through, please join this group and become active in it.

You don’t have to participate if you don’t want to.  Just by reading the post from other teens with RSD you will know that you are not alone.  And that is the most important thing to remember – You are not alone in your fight against RSD.

So please check out RSD Hope Teens and join the RSD Hope Teens Yahoo Group.  You will help yourself and others by sharing your own story about RSD.

{ 3 comments… read them below or add one }

TIFFINIE WARNER May 15, 2011 at 12:05 am

mother of a 10 year old try to find a group just for her to talk with other children that are going thought the same thing she is… Please help, she is a very strong little girl but keeps everything inside

Gwendolyn August 11, 2011 at 5:40 pm

I am a mother of an 11 year old boy with RSD. He was diagnosed almost a year ago. I too am a mother trying to find support for my child. 🙂

druusell April 25, 2015 at 9:28 am

Hello,I am a mother of a 16 yr old boy who has RSD. He was first diagnosed at 6yrs old. He has suffered thru a few flare ups but this one it the worst and has landed him n the 3rd hospital . This flare started after leg surgery and is by far the worst. He cant breathe without o2 and can not walk at all. We need help the Dr dont know how to help him.

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